Calla was born small but apparently healthy in June of 2010, joining her big brother Rowan. We were over the moon in love with her! After a couple weeks I started to notice that my camera flash caused her eyes to look white in pictures. I dismissed it at first but when it continued to …
I’ll admit that before Evan was born I was a mom that felt like it was important to have my kids vision checked before they started Kindergarten (and not necessarily before), and that’s exactly what I had done with my older kids. When Evan was a baby I became friends with our local Optometrist who …
Evan – Bilateral Cataracts, Patching, Amblyopia & Nystagmus Read More »
Zoe was born March 25, 2007, a perfectly healthy baby girl. It was less than a year before we noticed that her development, while still within normal ranges, was falling behind that of her peers. Around 9 months old, while at a physiotherapy appointment, the therapist noticed a jerk of her eyes. We saw an …
On June 15th 1990, my parents welcomed their third child and second baby girl into the world–ME! Little did they know, they were about to get the shock of their lifetime when the doctors told them that I was born with bilateral cataracts. They were so surprised because not only was I their third child, …
Jacqueline & Isabella – Bilateral congenital cataracts, & glaucoma Read More »
Naomi was born on May 11, 2009 via emergency C-Section after “crashing” with a dangerously slow heart beat following about 15 hours of an induced labor. She was diagnosed with Down syndrome at 9 days, and with a brain tumor at 7 weeks. The tumor was surgically removed, and she remains cancer free without radiation …
Naomi – Brain Tumor, Nystagmus, amblyopia and Poor Vision Read More »
Mirabel is 21 months old and she has Koolen deVries Syndrome – a microdeletion of part of her 17th chromosome (17q21.31). The syndrome is rare with 1 in 16,000 being born with the condition. Mirabel was born with crossed eyes and has been diagnosed with alternating esotrpia and accomodative esotropia, congential nystagmus, far-sightedness and astigmatism. …
Avery came in to this world fast and furious and hasn’t stopped. At around 3 months of age we noticed she would not make eye contact, still wasn’t smiling and even more disheartening was her eyes started shaking back and forth very quickly but small movement. At 4 months old we brought her in to …
Avery – Bilateral Congenital Cataracts and Nystagmus Read More »
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