Bilateral Congenital Cataracts

ROP WARRIOR T-SHIRT PRE-ORDER

We are excited to announce our newest awareness shirt for ROP (Retinopathy of prematurity). ROP is a disease of the eye that affects premature babies who have received intensive neonatal care, where oxygen therapy is used due to the premature development of their lungs.  We want to celebrate these tiny little warriors. We are offering our ROP warrior t-shirt design …

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Natalie and Riley – Bilateral Congenital Cataracts

I was born with bilateral cataracts in April 1984. The condition is hereditary due to a faulty gene passed down from my grandmother. Initially, the doctors told my parents that my vision was fine, but at 2 months old my grandmother noticed that I was not following anything with my eyes. My mother scheduled an …

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DIY Custom Sticky Patches

Did you ever wish you had a eye patch for a special occasion but couldn’t find one? My son wears sticky patches and other than drawing directly on them or sticking stickers on them they aren’t exactly the easiest thing to customize. We decided to make our own cool patches. They are easy to make …

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Evan – Bilateral Cataracts, Patching, Amblyopia & Nystagmus

I’ll admit that before Evan was born I was a mom that felt like it was important to have my kids vision checked before they started Kindergarten (and not necessarily before), and that’s exactly what I had done with my older kids. When Evan was a baby I became friends with our local Optometrist who …

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Jacqueline & Isabella – Bilateral congenital cataracts, & glaucoma

On June 15th 1990, my parents welcomed their third child and second baby girl into the world–ME! Little did they know, they were about to get the shock of their lifetime when the doctors told them that I was born with bilateral cataracts. They were so surprised because not only was I their third child, …

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Isla – Bilateral Congenital Cataract, Glaucoma, Scar Tissue, Infection

My second daughter, Isla, was born June 15th 2009.  My husband and I were delighted to have another daughter.  Isla was born in less than two hours, and I made it to the hospital only 15 minuets before she arrived. When Isla was two days old, the pediatrician informed us that she might have something …

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Charlott & Garrett: Bilateral Congenital Cataracts and Glaucoma

Charlotte was born with bilateral congenital cataracts and had her first surgery when she was 13 days old. Her first two years were rough. She had multiple surgeries, didn’t tolerate contacts for very long, and developed glaucoma in both eyes. But since she switched to glasses and her glaucoma stabilized, she’s been doing beautifully. She’s …

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Avery – Bilateral Congenital Cataracts and Nystagmus

Avery came in to this world fast and furious and hasn’t stopped. At around 3 months of age we noticed she would not make eye contact, still wasn’t smiling and even more disheartening was her eyes started shaking back and forth very quickly but small movement. At 4 months old we brought her in to …

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Ulani – Oculofaciocardiodental Syndrome (OFCD), Bilateral Congenital Cataracts and Glaucoma

Ulani, was born with a extremely rare syndrome called Oculofaciocardiodental Syndrome, or OFCD for short, which caused her bilateral congenital cataracts and glaucoma. It is so rare, that as of 2007, there were only 20 known cases in the world. On top of that she also has Lennox Gastaut Syndrome, dysphagia, global developmental delays, learning disabilities, a feeding …

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