Glaucoma

ROP WARRIOR T-SHIRT PRE-ORDER

We are excited to announce our newest awareness shirt for ROP (Retinopathy of prematurity). ROP is a disease of the eye that affects premature babies who have received intensive neonatal care, where oxygen therapy is used due to the premature development of their lungs.  We want to celebrate these tiny little warriors. We are offering our ROP warrior t-shirt design …

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Calla – Bilateral macular dysplasia, colobomas, glaucoma, cataract, partial cornea transplant, ONH, Farsighted,

Calla was born small but apparently healthy in June of 2010, joining her big brother Rowan.  We were over the moon in love with her!  After a couple weeks I started to notice that my camera flash caused her eyes to look white in pictures.  I dismissed it at first but when it continued to …

Calla – Bilateral macular dysplasia, colobomas, glaucoma, cataract, partial cornea transplant, ONH, Farsighted, Read More »

Jacqueline & Isabella – Bilateral congenital cataracts, & glaucoma

On June 15th 1990, my parents welcomed their third child and second baby girl into the world–ME! Little did they know, they were about to get the shock of their lifetime when the doctors told them that I was born with bilateral cataracts. They were so surprised because not only was I their third child, …

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Isla – Bilateral Congenital Cataract, Glaucoma, Scar Tissue, Infection

My second daughter, Isla, was born June 15th 2009.  My husband and I were delighted to have another daughter.  Isla was born in less than two hours, and I made it to the hospital only 15 minuets before she arrived. When Isla was two days old, the pediatrician informed us that she might have something …

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Charlott & Garrett: Bilateral Congenital Cataracts and Glaucoma

Charlotte was born with bilateral congenital cataracts and had her first surgery when she was 13 days old. Her first two years were rough. She had multiple surgeries, didn’t tolerate contacts for very long, and developed glaucoma in both eyes. But since she switched to glasses and her glaucoma stabilized, she’s been doing beautifully. She’s …

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Ulani – Oculofaciocardiodental Syndrome (OFCD), Bilateral Congenital Cataracts and Glaucoma

Ulani, was born with a extremely rare syndrome called Oculofaciocardiodental Syndrome, or OFCD for short, which caused her bilateral congenital cataracts and glaucoma. It is so rare, that as of 2007, there were only 20 known cases in the world. On top of that she also has Lennox Gastaut Syndrome, dysphagia, global developmental delays, learning disabilities, a feeding …

Ulani – Oculofaciocardiodental Syndrome (OFCD), Bilateral Congenital Cataracts and Glaucoma Read More »

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