How Mom and Dad found out I have PFV and the surgery My doctor, Dr. Chopra came to check me out after I was born, and noticed that I had a white spot on my pupil in my right eye. He was not sure why, he had never seen that before, he thought it would …
Jaxen- PFV, dense post-lenticular plaque and cataract Read More »
I noticed something was wrong with Julia’s eye when she was 6 months old. Her right pupil looked like it was a “mirror” or had a weird reflection. My husband and I discussed it and I decided I didn’t want to take her to the pediatrician because I figured I was overreacting. So I waited …
Poppy was born two weeks early weighing a healthy 7lb 2oz on the last day of September 2012 in Northampton, England. It was only when Poppy was 3 weeks old that my husband noticed there was something wrong with her left eye, one evening while pacing around the lounge to try and soothe her to sleep. She had been having …
Little Cassandra was born early 2013. At her 2 week checkup her pediatrician noticed something in her eye. She sent us to have it looked at with the specialist and after one visit we learned that she had a congenital cataract and that it needed to be fixed asap or her eye would not develop …
Ruby was born with a congenital cataract in her right eye. We didn’t discover this until a fateful night at urgent care when she was three months old. We were there in the middle of the night for a serious case of RSV. But the doctor kept coming back to her eye. I was concerned …
I wanted to share our story and experiences of discovering that our little girl had something wrong with her eye – a condition called PHPV (Persistent Hyperplastic Primary Vitreous, also known as Persistent Fetal Vascular Syndrome or PFVS). I found I searched the internet until I was blue in the face (not that I think …
Charlotte was born with bilateral congenital cataracts and had her first surgery when she was 13 days old. Her first two years were rough. She had multiple surgeries, didn’t tolerate contacts for very long, and developed glaucoma in both eyes. But since she switched to glasses and her glaucoma stabilized, she’s been doing beautifully. She’s …
Charlott & Garrett: Bilateral Congenital Cataracts and Glaucoma Read More »
Tommy is 2 years old. He has a unilateral congenital cataract discovered when he was 3 days old. He had his cataract removed at 5 weeks old and has been wearing a patch ever since. Just before he turned 2, he got his first pair of glasses- bifocals! He loves his sisters, trains, cars, and …
Mahli was diagnosed with a unilateral cataract when she was 9 months old and had it removed just a week later. The diagnosis turned our world upside down, and to be honest, it was a hard pill to swallow at first. As any parents would, we asked the hard questions like “What did we do …
Our story starts at Lily’s routine 2 week check up. Our pediatrician did all the normal tests: listened to her, shined lights up her nose and in her ears. Then she came to her eyes and she took an abnormally long time on her right eye. I asked what was wrong and she said she …
This Is Eli! 16 Months Old Elias Was Born With Bilateral Congenital Cataracts! He Had Bilateral Lensectomy ( Both Lenses Removed ) At 4 Weeks Old, And Has Been Wearing Contacts And Glasses Ever Since! Despite The Slight Delay In His Vision Development, Elias Has Never Let Anything Hold Him Back! He Is A Very …
Avery came in to this world fast and furious and hasn’t stopped. At around 3 months of age we noticed she would not make eye contact, still wasn’t smiling and even more disheartening was her eyes started shaking back and forth very quickly but small movement. At 4 months old we brought her in to …
Avery – Bilateral Congenital Cataracts and Nystagmus Read More »
When Sophia was less than 24 hours old, a pediatrician noticed an opacity on her right eye. He said it was hard to see, but definitely there. I was told to follow up at our 2 week check up. Fast forward to Sophia at 6 weeks old. We met Dr. P. for the first time. …
Liam was born in 2011 with bilateral congenital cataracts. His diagnosis was made on his second day of life. The pediatrician was unable to get a red reflex in his eye (this indicated that she was unable to see the back of the eye). I will never forget the words “I’m concerned.” By this point, …
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