Lennox Gastaut Syndrome

Ulani – Oculofaciocardiodental Syndrome (OFCD), Bilateral Congenital Cataracts and Glaucoma

Ulani, was born with a extremely rare syndrome called Oculofaciocardiodental Syndrome, or OFCD for short, which caused her bilateral congenital cataracts and glaucoma. It is so rare, that as of 2007, there were only 20 known cases in the world. On top of that she also has Lennox Gastaut Syndrome, dysphagia, global developmental delays, learning disabilities, a feeding …

Ulani – Oculofaciocardiodental Syndrome (OFCD), Bilateral Congenital Cataracts and Glaucoma Read More »

Scroll to Top