Bilateral Congenital Cateracts

Evan – Bilateral Cataracts, Patching, Amblyopia & Nystagmus

I’ll admit that before Evan was born I was a mom that felt like it was important to have my kids vision checked before they started Kindergarten (and not necessarily before), and that’s exactly what I had done with my older kids. When Evan was a baby I became friends with our local Optometrist who …

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Ulani – Oculofaciocardiodental Syndrome (OFCD), Bilateral Congenital Cataracts and Glaucoma

Ulani, was born with a extremely rare syndrome called Oculofaciocardiodental Syndrome, or OFCD for short, which caused her bilateral congenital cataracts and glaucoma. It is so rare, that as of 2007, there were only 20 known cases in the world. On top of that she also has Lennox Gastaut Syndrome, dysphagia, global developmental delays, learning disabilities, a feeding …

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