A few months after the removal surgery, Michael’s pupil scarred shut, despite using dilation drops. It was very disheartening. He also developed glaucoma, and was started on drops right away, but the drops didn’t seem to help much. Since we were so close to moving to a new state, Dr. Y recommended we wait to decide if Michael needed another surgery until the new doctor could see him. We met Dr. M, and a few weeks later Michael had surgery to remove the scar tissue around his pupil and to insert a drainage tube to help with the glaucoma. I remember the first time I removed the eye shield after the surgery. We could tell Michael could see with his left eye, even if all he could see was light and dark. I still cry when I think about it. That gave us hope.
We tried to find a contact lens, but Michael’s eye has a steep slope, so the contact never fit right. Michael was a champ, though! We tried 3 different types of contacts, and he let us try to put them in with hardly any fuss. The longest a contact stayed in, though, was only 2 hours. We decided to put him in glasses instead. When Michael was 1 year old, he got his first pair of glasses. He is now 2, and on his 2nd pair of glasses and 2nd prescription. We are patching 75 minutes a day, slowing working our way up. By the end of September, we hope to be patching 2 hours a day and will continue to increase. Some days are harder than others with patching, but I can tell it is working and definitely worth the hard work.
The glaucoma is back now, but thankfully the drops are keeping it under control this time. He may need an exam under anesthesia in the future to find out why the drainage tube isn’t working as well as it should, but for now the pressure is down and Michael is comfortable. I am very proud of this little man. He has been through so much, but is still such a happy kid. He is very social, and loves his doctors. He hugs them every time we see them. We still have a long road ahead of us, but with help from family and his amazing doctors, we’ll reach our goals.