How Mom and Dad found out I have PFV and the surgery My doctor, Dr. Chopra came to check me out after I was born, and noticed that I had a white spot on my pupil in my right eye. He was not sure why, he had never seen that before, he thought it would …
Jaxen- PFV, dense post-lenticular plaque and cataract Read More »
I noticed something was wrong with Julia’s eye when she was 6 months old. Her right pupil looked like it was a “mirror” or had a weird reflection. My husband and I discussed it and I decided I didn’t want to take her to the pediatrician because I figured I was overreacting. So I waited …
I wanted to share our story and experiences of discovering that our little girl had something wrong with her eye – a condition called PHPV (Persistent Hyperplastic Primary Vitreous, also known as Persistent Fetal Vascular Syndrome or PFVS). I found I searched the internet until I was blue in the face (not that I think …
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